Please confirm topic selection

Are you sure you want to trigger topic in your Anconeus AI algorithm?

Please confirm action

You are done for today with this topic.

Would you like to start learning session with this topic items scheduled for future?

Updated: Jun 16 2021

Goldenhar Syndrome

Images
https://upload.orthobullets.com/topic/12745/images/screen_shot_2017-01-14_at_3.51.22_pm.jpg
https://upload.orthobullets.com/topic/12745/images/screen_shot_2017-01-14_at_3.51.43_pm.jpg
https://upload.orthobullets.com/topic/12745/images/screen_shot_2017-01-14_at_3.51.53_pm.jpg
https://upload.orthobullets.com/topic/12745/images/goldenhar_syndrome_limbal_dermoid.jpg
https://upload.orthobullets.com/topic/12745/images/goldenhar_syndrome.jpg
  • summary
    • Goldenhar Syndrome, also known as oculo-auriculo-vertebral spectrum, is a rare congenital disorder caused by an error in the embryological development of the ectoderm, that presents with thoracic scoliosis, crainofacial microsomia, and ocular desmoid cysts. 
    • Diagnosis is made based on family history associated with typical clinical features.
    • Treatment involves a multidisciplinary approach to address spine manifestations, ocular abnormalities, and craniofascial abnormalities.
  • Epidemiology
    • Incidence
      • relatively rare
        • seen in 1:3500-25000 births
    • Demographics
      • affects males more than females (3:2)
  • Etiology
    • Pathophysiology
      • results from an error in the embryological development of the ectoderm
        • leads to unilateral arrest or dysplastic development of
          • first and second branchial arches
          • first pharyngeal pouch
          • branchial cleft
    • Genetics
      • inheritance
        • multifactorial but usually sporadic
        • may have a genetic component
          • rarely inherited in an autosomal dominant pattern (1-2%)
    • Associated conditions
      • spine
        • thoracic scoliosis
        • defects of vertebral segmentation (cervical most common)
      • face
        • partially formed or absent ear (microtia)
        • benign growths around the eye (ocular desmoid cysts)
        • chin or mouth deviated to the affected side
        • cleft lip/palate
      • systemic
        • hearing defects
        • kidney defects
        • normal intelligence
  • Presentation
    • History
      • may be detected at birth or pre-operative ultrasound screening
    • Symptoms
      • facial asymmetry
      • hearing problems
      • dental underdevelopment
      • spinal deformity
    • Physical exam
      • inspection
        • hemifacial microsomia tends to affect the right side of face
        • spine aligment, rotation
      • motion
        • fixed spine curvatures
      • neurovascular
        • may be affected with spine anomalies
  • Imaging
    • Radiographs
      • indication
        • screening and assessment of spinal anomlies
      • views
        • full length spine radiographs (AP and lateral)
      • findings
        • cerviothoracic scoliosis
        • defects of vertebral segmentation
    • CT scan
      • indications
        • better visualization and planning of spinal anomalies
      • views
        • axial, sagittal and coronal cuts
        • 3D reconstruction
  • Treatment
    • Nonoperative
      • supportive therapy
        • indications
          • first line of treatment
        • modalities
          • monitor lung function
          • monitor progression of scoliotic curve
          • referral to ophthamology, ENT, plastic surgery, cardiology, and nephrology
    • Operative
      • thoracostomy and VEPTRL (vertical expandable prosthetic titanium rib) implantation
        • indications
          • progressive infantile scoliosis
          • thoracic insufficiency syndrome
  • Complications
    • Curve progression
      • can lead to thoracic insufficiency syndrome
    • Spinal cord tethering
    • Systemic complications
      • cardiac
      • renal
Card
1 of 0
Private Note